On Monday, Noah was telling me about every ten minutes or so that his head and heart were hurting.
He experiences many different chest pain episodes on a daily basis, but his head hurting was a new symptom. He gets these shooting pains in his head often that last for about 30 seconds before they go away, but they are not headaches. I decided to call UCLA to let them know because they like us to keep them informed of any new symptoms. They asked us to come in first thing in the morning.
Our appointment was at 9 a.m. so that meant we had to wake up super early. If you know me well, you know I’m not an early bird :) We met with the entire transplant team, including the dentist. Ha! Did you know a dentist was part of the team? Neither did I! Pretty cool, since I actually had a few questions for him. We saw the nutritionist, transplant coordinator, social worker, and doctors. Noah had an EKG, echo, labs, and they put a 24 hour holter heart monitor on him that records all his heart activity. As you can imagine… it was an extremely long day.
The most exciting part of the visit was when the Transplant Coordinator told us that she had seen Noah’s name come up on the list several times. WHOAH!!! That kind of took our breath away.
What does that mean?
When a heart becomes available in our region, UNOS will call UCLA and give them a list of names. They call the first name on the list, and if they can’t except the heart, they go on down the list. If your name has come up on the list, you are getting close! This was very exciting to us, yet frightening at the same time. It makes it all that much more real.
We learned that UCLA get calls for hearts often, but that they are very picky about which hearts they accept. They want the absolute best for their patients. We love that about them and it is why they are one of the top transplant centers in the nation. We will keep you all updated on what the doctors find with Noah’s test results.
Our prayer is that he would remain healthy and strong. Noah had such an amazing attitude today and was telling riddles to the doctors and nurses. Reminded me of our Wicked Softball fundraiser when he was amusing all the girls with his jokes and humor. He is so strong and knows God’s in control.
- Melody (Noah’s Mom)