In January 2012, due to their mom’s (Melody) past health problems, it was suggested that her sons Noah and Jonah get Echocardiograph (Echo) tests sometime in the future. After one missed appointment and the usual delays of getting to the doctor, Noah’s parents took him to get an Echo after he complained about his chest hurting. As most parents would, they went in not thinking much would come from it.
Two days later, their pediatrician called with the sad news that Noah’s test came back with some abnormalities and that he needed to see a Cardiologist. They immediately scheduled a visit. During the next few months, Noah was seen by numerous specialists at UCLA Medical Center and Children’s Hospital of Los Angeles (CHLA). Eventually it was determined that 9 yr old Noah suffered from Restrictive Cardiomyopathy (RCM).
RCM is when the walls of the heart are rigid and lack the flexibility to expand as the ventricles fill with blood. Essentially, the heart cannot relax normally during the time between heartbeats. Eventually the heart loses the ability to pump blood properly, leading to heart failure.
On May 31, Jason & Melody were told that a pacemaker or defibrillator would not be sufficient and Noah would need a heart transplant. In fact, based on his tests, he would need to be put on the transplant list right away.
On August 9th, 2012 they met with UCLA’s Heart Transplant team for the first time to learn more about what this all entailed. After numerous doctor visits, Noah was officially listed on the National Transplant registry on Sept 20th, 2012. Now… the real waiting begins. While they estimated 6-9 months, it depends on many factors, and has now been over a year. Hopefully they get “the call” soon.
The Lietzau family knows that God has Noah in the palm of his hands and is directing his steps. They know that He will use this situation to bring glory to Himself. They are also incredibly thankful for the community that has come alongside them as Noah’s Story continues to unfold.
To read more about Noah’s Story, including how Noah reacted to the tough news, insurance complications, and how his parents have dealt with their “new reality”, go to the “News” section and read Melody’s past blogs, specifically “Heavy News“, “More Waiting“, and “A Plan“.
Pictured above: Jonah (7), Melody, Noah (10), Jason, Hannah (4)