We are now more than 48 hours since Hannah had her surgery and she is doing terrific. One of the goals is to lose more and more wires and tubes each day. All the tubes and wires that she is hooked up to looks like a tangled mess and makes it difficult to move around.
Today we met with Hannah’s surgeon Dr. Gates. I have to admit it was a little overwhelming to sit across the room from the man who played a big part in helping save our little girls life four years ago. We discussed the process of the Fontan operation Hannah needs to have and what
I apologize for the lack of updates. I feel like at times I have been running a marathon and my body and emotions just can’t keep up. I want to sit and write and I emotionally can’t put my thoughts into words. I’m going to start with giving some details about Hannah and how she
Oh sweet friends and family… we are once again overwhelmed by the love and support you showed us last night. Chik-Fil-A was hopping from 5-8. It was so much fun talking with everyone and meeting so many for the first time. We are honored that you would journey with us, and love us, in that
Noah had his appointment at the UCLA transplant clinic this week. It was the usual visit of labs, echo, and meeting with each member of the team. The visit went great and everything looked the same. We asked our usual question… “have you seen Noah’s name come up on the transplant list for a
I wanted to update you all on the recent doctors visits for both Noah and Jason. Noah saw Dr. Chang & Dr. Alejos yesterday. There were no big changes from the last two months. He is going to put him on one baby aspirin a day. The doctors discussed the possibility of him having