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Wish Our family Had More Spoons

I wanted to give you all a quick update on our family and tell you thank you for your prayers. We have had several doctor appointments over the last month. Noah’s heart cath couldn’t have gone any better. The doctor was very pleased with his numbers and said they even looked better than his last

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New Beginnings

Update on the Lietzau’s Our family started back to school and are slowly settling back into our routines. When school started we were in the middle of a big move. We sold our home of ten years and decided to relocate to LaMirada. This was a difficult move for us because we loved our home

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Update

I apologize for being so late on this update. It has been a CRAZY week. Not only did we have Noah’s big Cath procedure, we had to go back to UCLA on Wednesday for a stress test, we put our house up for sale, and made an offer on a house all in the same

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3 Years

This Saturday will be three years to the day that we were told that our boy had Cardiomyopathy and would need a transplant. It has and continues to be a journey filled with fear, faith, joy, tears, and so many more emotions. We have seen God do incredible things. The fact that Noah is still

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Guest Post

Thank you to everyone who continues to love and support Mel, Jason, and their kiddos. Mel asked me to write a guest blog post regarding her most recent appointments. As you know, she has been having progressive muscle weakness with some rapid changes recently. This has affected her significantly in the areas of walking, driving,

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Cause For Celebration

I want to start off by saying thank you so much for the overwhelming response to my last post. You all have been so encouraging to us. It feels great to know we are not walking this road alone. The day after I posted my last post we finally were able to get an appointment

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How Noah’s mom lives with MD

I have been encouraged by a few to share my story about living life with MD. To be honest it’s been something I haven’t really felt comfortable sharing. I know many of you will find that hard to believe since I pretty much live my life like an open book. I think the reason is

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Update From Noah

Noah’s Thoughts Hi everyone this is Noah. I wanted to tell you all that my heart is doing fine. I’m happy that I haven’t gotten worse I took this weird test to see how I would do in high altitudes because I want to go to camp and Big Bear. I’m able to go to

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Thanksgiving

Thanksgiving is fast approaching and we have so much to be thankful for: Our sweet boy has made it almost three years since his first diagnosis in January 2012. He has been on the transplant list for over two years now and has remained hospital free. I can’t tell you what joy it brings me

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It’s not about the why it’s about the Who

The last two weeks have been rough. I have been to at least eight doctor appointments. Six of which have been for me. I have been told after allergy testing that I’m allergic to almost everything except foods(Thank you Jesus),I had a CT scan of my sinuses, told I need tubes put in my ears,

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