Here are links to various websites that you may find interesting as you learn more about Noah, his disease, and upcoming surgery.
Children’s Cardiomyopathy Foundation – national, non-profit focused on pediatric cardiomyopathy (what Noah has), a chronic disease of the heart muscle. A FANTASTIC site that provides easy-to-understand information on everything relating to RCM, from sign & treatment of the disease to how to care for a child dealing with it.
Transplant Living - a project of the United Network for Organ Sharing (UNOS), a nonprofit organization that maintains the national organ donor list. A wonderful site that takes you though everything involved before, during, and after pediatric transplants.
Donate Life America - alliance of national organizations and state teams across the United States committed to increasing organ, eye and tissue donation. Find out more about becoming an organ donor!
National Foundation for Transplants (NFT) - A national organization that offers fundraising assistance and guidance to make the transplant process easier for patients.
UCLA Pediatric Cardiology - Mattel Children’s Hospital is where Noah will be getting his procedure. One of the most highly ranked transplant centers in the world.
American Heart Association – national organization committed to build healthier lives, free of cardiovascular diseases and stroke